Requires the Director of NIH to: (1) expand and coordinate NIH activities related to cancer survivorship; and (2) establish an Office on Survivorship within the Institute. Creates the position of Associate Director for Survivorship.
Requires the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Protection, to: (1) study the health challenges associated with cancer survivorship and carry out projects and interventions; and (2) make grants for the monitoring and evaluation of cancer care and survivorship.
[Congressional Bills 107th Congress]
[From the U.S. Government Publishing Office]
[H.R. 4963 Introduced in House (IH)]
107th CONGRESS
2d Session
H. R. 4963
To provide for the expansion and coordination of activities of the
National Institutes of Health and the Centers for Disease Control and
Prevention with respect to research and programs on cancer
survivorship, and for other purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
June 19, 2002
Mr. Hoyer (for himself, Mr. Wicker, Mr. Serrano, Mr. Dingell, Mr.
Hinchey, Ms. DeLauro, Mr. Hall of Ohio, Mr. Kennedy of Rhode Island,
Mr. Oxley, Mr. Cunningham, Mr. McNulty, Mr. Pickering, Mr. Horn, Mr.
Doggett, and Mr. Barton of Texas) introduced the following bill; which
was referred to the Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To provide for the expansion and coordination of activities of the
National Institutes of Health and the Centers for Disease Control and
Prevention with respect to research and programs on cancer
survivorship, and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Cancer Survivorship Research and
Quality of Life Act of 2002''.
SEC. 2. FINDINGS.
The Congress finds as follows:
(1) There are more than 9,000,000 individuals in the United
States today who are cancer survivors (living with, through,
and beyond cancer).
(2) 60 percent of cancer survivors are 65 years of age and
older.
(3) 62 percent of adults diagnosed with cancer today will
be alive 5 years from now.
(4) In 1960, 4 percent of children with cancer survived
more than 5 years.
(5) 77 percent of children (age 0 through 14) diagnosed
with cancer today will be living five years from now.
(6) Three out of every four American families will have at
least one family member diagnosed with cancer.
(7) 24 percent of adults with cancer are parents who have a
child 18 years or younger living in the home.
(8) One of every four deaths in the United States is from
cancer. In 2002, 555,500 Americans will die of cancer--more
than 1,500 people a day.
(9) The annual cost of cancer in the United States is
$180,000,000,000 in direct and indirect costs.
(10) In fiscal year 2001 the National Institutes of Health
invested $38,000,000 in survivorship--less than $4.25 per
survivor.
SEC. 3. CANCER CONTROL PROGRAMS.
Section 412 of the Public Health Service Act (42 U.S.C. 285a-1) is
amended--
(1) in the first sentence, by inserting ``, for
survivorship,'' after ``treatment of cancer'';
(2) in paragraph (1)(B), by striking ``cancer patients''
and all that follows and inserting the following: ``cancer
patients, families of cancer patients, and cancer survivors,
and''; and
(3) in paragraph (3), by inserting ``and concerning cancer
survivorship programs,'' after ``control of cancer''.
SEC. 4. EXPANSION AND COORDINATION OF ACTIVITIES OF NATIONAL INSTITUTES
OF HEALTH WITH RESPECT TO CANCER SURVIVORSHIP RESEARCH.
(a) In General.--Subpart 1 of part C of title IV of the Public
Health Service Act (42 U.S.C. 285 et seq.) is amended by adding at the
end following section:
``SEC. 417D. EXPANSION AND COORDINATION OF ACTIVITIES WITH RESPECT TO
CANCER SURVIVORSHIP RESEARCH.
``(a) In General.--
``(1) Expansion of activities.--The Director of NIH shall
expand and coordinate the activities of the National Institutes
of Health with respect to cancer survivorship research.
``(2) Administration of program; collaboration among
agencies.--The Director of NIH shall carry out this section
acting through the Director of the Institute and in
collaboration with any other agencies that the Director
determines appropriate.
``(b) Office on Survivorship.--
``(1) In general.--The Director of NIH shall establish an
Office on Survivorship within the Institute through which the
activities under subsection (a)(1) shall be implemented and
directed.
``(2) Associate director for survivorship; appointment;
function.--
``(A) There shall be in the Institute an Associate
Director for Survivorship to coordinate and promote the
programs in the Institute concerning cancer
survivorship research. The Associate Director shall be
appointed by the Director of the Institute from among
individuals who, because of their professional training
or experience, are equipped to address the breadth of
needs associated with cancer survivorship.
``(B) Not later than February 1, 2003, the
Associate Director for Survivorship shall prepare and
submit to the Congress report providing a description
of the survivorship activities of the Office and
strategies for future activities.''.
(b) Funding.--Section 417B(d)(2) of the Public Health Service Act
(42 U.S.C. 285a-8(d)(2)) is amended--
(1) in subparagraph (B), by striking ``and'' after the
semicolon;
(2) in subparagraph (C), by striking ``each'' and all that
follows and inserting ``each fiscal year through 2002; and'';
and
(3) by adding at the end the following:
``(D) 13 percent, in the case of fiscal year 2003
and each subsequent fiscal year, of which not less than
3 percent shall be for the Office on Survivorship under
section 417D.''.
SEC. 5. EXPANSION OF CDC COMPREHENSIVE CANCER PROGRAMS; PROGRAMS TO
IMPROVE CANCER SURVIVORSHIP.
(a) In General.--The Secretary of Health and Human Services
(referred to in this Act as the ``Secretary''), acting through the
Director of the Centers for Disease Control and Prevention, shall study
the unique health challenges associated with cancer survivorship and
carry out projects and interventions to improve the long-term health
status of cancer survivors. Such projects shall be carried out directly
and through the awards of grants or contracts.
(b) Certain Activities.--Activities under subsection (a) include--
(1) the expansion of current cancer surveillance systems to
track the health status of cancer survivors and determine
whether cancer survivors are at-risk for other chronic and
disabling conditions;
(2) assess the unique challenges associated with cancer
survivorship;
(3) the development of a national cancer survivorship
action plan, in partnership with health organizations focused
on cancer survivorship, to be carried out in coordination with
the state-based comprehensive cancer control program of the
Centers for Disease Control and Prevention to--
(A) develop unique and innovative post-treatment
programs, services and demonstrations designed to
support and advance cancer survivorship through--
(i) promotion of physical activity and
healthy lifestyles;
(ii) educational outreach programs for
health care providers;
(iii) support for innovative programs to
improve the quality of life among cancer
survivors;
(iv) home and community-based
interventions;
(v) peer support and mentor programs;
(vi) public awareness and outreach
campaigns; and
(vii) information dissemination to inform
health care providers and cancer survivors of
their health care options and available
survivorship programs; and
(B) develop unique cancer survivorship
demonstration programs designed to address the needs of
underserved populations, including minorities,
children, and persons residing in rural areas.
(c) Coordination of Activities.--The Secretary shall assure that
activities under this section are coordinated as appropriate with other
agencies of the Public Health Service.
(d) Report to Congress.--Not later than October 1, 2003, the
Secretary shall submit to the Congress a report describing the results
of the evaluation under subsection (a), and as applicable, the
strategies developed under such subsection.
(e) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated $75,000,000
for fiscal year 2003, and such sums as may be necessary for each of the
fiscal years 2004 through 2006.
SEC. 6. MONITORING AND EVALUATING QUALITY CANCER CARE AND CANCER
SURVIVORSHIP.
(a) In General.--Part M of title III of the Public Health Service
Act (42 U.S.C. 280e et seq.) is amended by inserting after section 399E
the following section:
``SEC. 399E-1. MONITORING AND EVALUATING QUALITY CANCER CARE AND CANCER
SURVIVORSHIP.
``(a) In General.--The Secretary, acting through the Director of
the Centers for Disease Control and Prevention, and in consultation
with the National Cancer Institute, shall make grants to eligible
entities for the purpose of enabling such entities to monitor and
evaluate quality cancer care, develop information concerning quality
cancer care, and monitor cancer survivorship.
``(b) Eligible Entities.--For purposes of this section, an entity
is an eligible entity for a fiscal year if the entity--
``(1) operates a statewide cancer registry with funds from
a grant made under section 399B for such fiscal year; and
``(2) is certified by the North American Association of
Central Cancer Registries or another similar certification
organization.
``(c) Contracting Authority.--In carrying out the purpose described
in subsection (a), an eligible entity may expend a grant under such
subsection to enter into contracts with academic institutions, cancer
centers, and other entities, when determined appropriate by the
Secretary.
``(d) Application for Grant.--A grant may be made under subsection
(a) only if an application for the grant is submitted to the Secretary
and the application is in such form, is made in such manner, and
contains such agreements, assurances, and information as the Secretary
determines to be necessary to carry out this section.
``(e) Authority of Secretary Regarding Use of Grant.--The Secretary
shall determine the appropriate uses of grants under subsection (a) to
achieve the purpose described in such subsection.
``(f) Authorization of Appropriations.--For the purpose of carrying
out this section, there are authorized to be appropriated such sums as
may be necessary for each of the fiscal years 2003 through 2007.''.
(b) Conforming Amendment Regarding Authorization of
Appropriations.--Section 399F(a) of the Public Health Service Act (42
U.S.C. 280e-4(a)) is amended in the first sentence by striking ``this
part,'' and inserting ``this part (other than section 399E-1),''.
<all>
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
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