Birth Defects and Developmental Disabilities Prevention Act of 2002

Birth Defects and Developmental Disabilities Prevention Act of 2002 - (Sec. 2) Amends Public Health Service Act provisions concerning the National Center on Birth Defects and Developmental Disabilities to add "disabilities and health" to categories of data with regard to which the Secretary of Heath and Human Services is directed to collect, analyze, and make available. Requires the Secretary to conduct research on and promote the prevention of birth defects and disabilities and to support a National Spina Bifida Program to prevent and reduce suffering from the nation's most common permanently disabling birth defect.

Removes certain provisions regarding data collection, including one requiring the Secretary to collect and analyze data by gender and ethnic and racial group. Modifies reporting requirements, including to require the Secretary to report to Congress on the incidence and prevalence of individuals living with developmental disabilities and the health status of such individuals. Declares that certain data and information collected under the Act shall be subject to a specified provision of the General Education Provisions Act pertaining to privacy.

Requires that the members of the advisory committee appointed by the Director of the National Center for Environmental Health that have expertise in birth defects, developmental disabilities, and disabilities and health shall be transferred to and shall advise the National Center on Birth Defects on the date of the enactment of this Act.

Authorizes appropriations through FY 2007.

(Sec. 3) Amends the Developmental Disabilities Assistance and Bill of Rights Act of 2000 to revise provisions concerning allotments to State councils on developmental disabilities.

[Congressional Bills 107th Congress]
[From the U.S. Government Publishing Office]
[S. 2980 Introduced in Senate (IS)]







107th CONGRESS
  2d Session
                                S. 2980

     To revise and extend the Birth Defects Prevention Act of 1998.


_______________________________________________________________________


                   IN THE SENATE OF THE UNITED STATES

                           September 19, 2002

Mr. Bond (for himself, Mr. Dodd, Mr. Frist, and Mr. Kennedy) introduced 
the following bill; which was read twice and referred to the Committee 
               on Health, Education, Labor, and Pensions

_______________________________________________________________________

                                 A BILL


 
     To revise and extend the Birth Defects Prevention Act of 1998.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Birth Defects and Developmental 
Disabilities Prevention Act of 2002''.

SEC. 2. NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL 
              DISABILITIES.

    Section 317C of the Public Health Service Act (42 U.S.C. 247b-4) is 
amended--
            (1) in subsection (a)(2)--
                    (A) in subparagraph (A)--
                            (i) by striking ``and developmental 
                        disabilities'' and inserting ``, developmental 
                        disabilities, and disabilities and health''; 
                        and
                            (ii) by striking ``subsection (d)(2)'' and 
                        inserting ``subsection (c)(2)'';
                    (B) in subparagraph (B), by striking ``and'' at the 
                end;
                    (C) in subparagraph (C), by striking the period; 
                and
                    (D) by adding at the end the following:
                    ``(D) to conduct research on and to promote the 
                prevention (including the prevention of secondary 
                conditions) of such birth defects and disabilities; and
                    ``(E) to support a National Spina Bifida Program to 
                prevent and reduce suffering from the nation's most 
                common permanently disabling birth defect.'';
            (2) by striking subsection (b);
            (3) in subsection (d)--
                    (A) in the matter preceding paragraph (1), by 
                striking ``1999'' and inserting ``2004'';
                    (B) in paragraph (1)--
                            (i) by inserting ``and developmental 
                        disabilities'' after ``defects'' each place 
                        that such appears; and
                            (ii) by inserting ``and affected quality of 
                        life'' before the semicolon;
                    (C) in paragraph (3), by inserting ``and 
                developmental disabilities'' after ``defects'';
                    (D) in paragraph (4), by striking ``and'' at the 
                end;
                    (E) by redesignating paragraph (5) as paragraph 
                (7); and
                    (F) by inserting after paragraph (4), the 
                following:
            ``(5) contains information on the incidence and prevalence 
        of individuals living with birth defects and disabilities, any 
        health disparities experienced by such individuals, and 
        recommendations for improving the health and wellness and 
        quality of life of such individuals;
            ``(6) contains a summary of recommendations from all birth 
        defects research conferences sponsored by the agency including 
        conferences related to spina bifida; and'';
            (4) in subsection (e)--
                    (A) by inserting ``, including section 444 of the 
                General Education Provisions Act,'' after ``privacy of 
                information''; and
                    (B) by inserting before the period the following: 
                ``, except that the Centers for Disease Control and 
                Prevention shall have access to information under 
                section 444(b)(1)(F) of such Act solely for purposes of 
                carrying out subsection (a)(1) of this section and 
                shall otherwise comply with all other requirements of 
                such section 444'';
            (5) by redesignating subsections (c), (d), and (e) as 
        subsections (b), (c), and (d), respectively;
            (6) by inserting after subsection (d) (as so redesignated), 
        the following:
    ``(e) Advisory Committee.--Notwithstanding any other provision of 
law, the members of the advisory committee appointed by the Director of 
the National Center for Environmental Health that have expertise in 
birth defects, developmental disabilities, and disabilities and health 
shall be transferred to the National Center on Birth Defects on the 
date of enactment of the Birth Defects and Developmental Disabilities 
Prevention Act of 2002.''; and
            (7) in subsection (f), by striking ``$30,000,000'' and all 
        that follows and inserting ``such sums as may be necessary for 
        each of fiscal yeas 2003 through 2007.''.
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