Johanna's Law

Gynecologic Cancer Education and Awareness Act of 2003 or Johanna's Law - Directs The Secretary of Health and Human Services: (1) through the National Institutes of Health (NIH), and in collaboration with the Director of the Centers for Disease Control and Prevention, to carry out a national campaign to increase the awareness and knowledge of women with respect to gynecologic cancers; and (2) through NIH and the Director, to carry out a demonstration program with nonprofit private entities to test different outreach and education strategies to increase such awareness among women and health care providers.

[Congressional Bills 108th Congress]
[From the U.S. Government Publishing Office]
[H.R. 3438 Introduced in House (IH)]







108th CONGRESS
  1st Session
                                H. R. 3438

  To provide for programs to increase the awareness and knowledge of 
  women and health care providers with respect to gynecologic cancers.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                            November 4, 2003

 Mr. Levin (for himself, Ms. Granger, Ms. DeLauro, Mrs. Wilson of New 
Mexico, Mr. Abercrombie, Ms. Baldwin, Mr. Bachus, Mr. Bell, Mr. Bishop 
of New York, Mr. Burgess, Mr. Cummings, Mr. Deutsch, Mr. Faleomavaega, 
Mr. Frank of Massachusetts, Mr. Frost, Ms. Hart, Mr. Honda, Mr. Israel, 
Mr. Kildee, Mr. LaTourette, Ms. Lofgren, Mrs. Maloney, Mr. Matsui, Mrs. 
  McCarthy of New York, Ms. McCollum, Mr. McDermott, Mr. McHugh, Mr. 
 McNulty, Mr. Menendez, Mr. Moran of Virginia, Mr. Nadler, Mr. Owens, 
 Ms. Slaughter, Mr. Towns, Mrs. Jones of Ohio, Mr. Waxman, Mr. Wexler, 
and Mr. Wynn) introduced the following bill; which was referred to the 
                    Committee on Energy and Commerce

_______________________________________________________________________

                                 A BILL


 
  To provide for programs to increase the awareness and knowledge of 
  women and health care providers with respect to gynecologic cancers.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Gynecologic Cancer Education and 
Awareness Act of 2003'' or ``Johanna's Law''.

SEC. 2. CERTAIN PROGRAMS REGARDING GYNECOLOGIC CANCERS.

    (a) National Public Awareness Campaign.--
            (1) In general.--The Secretary of Health and Human Services 
        (referred to in this section as the ``Secretary''), acting 
        through the Director of the National Institutes of Health and 
        in collaboration with the Director of the Centers for Disease 
        Control and Prevention, shall carry out a national campaign to 
        increase the awareness and knowledge of women with respect to 
        gynecologic cancers.
            (2) Written materials.--Activities under the national 
        campaign under paragraph (1) shall include--
                    (A) maintaining a supply of written materials that 
                provide information to the public on gynecologic 
                cancers; and
                    (B) distributing the materials to members of the 
                public upon request.
            (3) Public service announcements.--Activities under the 
        national campaign under paragraph (1) shall, in accordance with 
        applicable law and regulations, include developing and placing, 
        in telecommunications media, public service announcements 
        intended to encourage women to discuss with their physicians 
        their risks of gynecologic cancers. Such announcement shall 
        inform the public on the manner in which the written materials 
        referred to in paragraph (2) can be obtained upon request, and 
        shall call attention to early warning signs and risk factors 
        based on the best available medical information.
    (b) Demonstration Projects Regarding Outreach and Education 
Strategies.--
            (1) In general.--The Secretary, acting through the Director 
        of the National Institutes of Health and the Director of the 
        Centers for Disease Control and Prevention, shall carry out a 
        program to make grants to nonprofit private entities for the 
        purpose of testing different outreach and education strategies 
        to increase the awareness and knowledge of women and health 
        care providers with respect to gynecologic cancers, including 
        early warning signs and treatment options. Such strategies 
        shall include strategies directed at physicians, nurses, and 
        key health professionals and families.
            (2) Preferences in making grants.--In making grants under 
        paragraph (1), the Secretary shall give preference--
                    (A) to applicants with demonstrated expertise in 
                gynecologic cancer education or treatment or in working 
                with groups of women who are at especially high risk of 
                gynecologic cancers; and
                    (B) to applicants that, in the demonstration 
                project under the grant, will establish linkages 
                between physicians, nurses, and key health 
                professionals, hospitals, payers, and State health 
                departments.
            (3) Application for grant.--A grant may be made under 
        paragraph (1) only if an application for the grant is submitted 
        to the Secretary and the application is in such form, is made 
        in such manner, and contains such agreements, assurances, and 
        information as the Secretary determines to be necessary to 
        carry out this subsection.
            (4) Certain requirements.--In making grants under paragraph 
        (1)--
                    (A) the Secretary shall make grants to not fewer 
                than five applicants, subject to the extent of amounts 
                made available in appropriations Acts; and
                    (B) the Secretary shall ensure that information 
                provided through demonstration projects under such 
                grants is consistent with the best available medical 
                information.
            (5) Report to congress.--Not later than February 1, 2008, 
        the Secretary shall submit to the Congress a report that--
                    (A) summarizes the activities of demonstration 
                projects under paragraph (1);
                    (B) evaluates the extent to which the projects were 
                effective in increasing early detection of gynecologic 
                cancers and awareness of risk factors and early warning 
                signs in the populations to which the projects were 
                directed; and
                    (C) identifies barriers to early detection and 
                appropriate treatment of such cancers.
    (c) Funding.--
            (1) National public awareness campaign.--For the purpose of 
        carrying out subsection (a), there is authorized to be 
        appropriated in the aggregate $15,000,000 for the fiscal years 
        2004 through 2006.
            (2) Demonstration projects regarding outreach and education 
        strategies.--
                    (A) Authorization of appropriations.--For the 
                purpose of carrying out subsection (b), there is 
                authorized to be appropriated in the aggregate 
                $55,000,000 for the fiscal years 2004 through 2006.
                    (B) Administration, technical assistance, and 
                evaluation.--Of the amounts appropriated under 
                subparagraph (A), not more than 9 percent may be 
                expended for the purpose of administering subsection 
                (b), providing technical assistance to grantees under 
                such subsection, and preparing the report under 
                paragraph (5) of such subsection.
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