Advancing FASD Research, Prevention, and Services Act - Amends the Public Health Service Act to require the Secretary of Health and Human Services to establish a research agenda for the Fetal Alcohol Spectrum Disorders (FASD) and facilitate surveillance and prevention of such disorders.
Requires the Secretary to award grants for individuals with FASD, including to: (1) establish programs of surveillance, prevention, and treatment for such individuals; (2) identify best practices for educating affected children, educating officials in the criminal justice system on coping with such individuals, and educating adoption or foster care agency officials about services for children with FASD; and (3) provide for transitional services for such individuals, for respite care for their caretakers, and for increased awareness and identification of FASD at health centers.
Requires: (1) the Secretary to provide for continuation of the Interagency Coordinating Committee on Fetal Alcohol Syndrome; and (2) the Comptroller General to evaluate and make recommendations regarding appropriate federal FASD activities.
Requires the Secretary to issue public service announcements to raise awareness of the risks associated with alcohol consumption during pregnancy.
Requires the National Task Force on Fetal Alcohol Spectrum Disorders to identify and describe the ten most important actions that must be taken to reduce prenatal alcohol exposure and all its adverse outcomes.
Requires the Secretary of Education to direct the Office of Special Education and Rehabilitative Services to take certain actions with regard to individuals with FASD, including implementing screening procedures and introducing curricula on how to educate children with such disorders.
Requires the Attorney General to direct the Office of Juvenile Justice and Delinquency Prevention to take certain actions with regard to individuals with FASD, including educating officials on how to treat such individuals, studying the inadequacies of the current system for dealing with such individuals, and developing transition programs for such individuals who are released from incarceration.
[Congressional Bills 109th Congress]
[From the U.S. Government Publishing Office]
[S. 1722 Introduced in Senate (IS)]
109th CONGRESS
1st Session
S. 1722
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Syndrome prevention and services program, and for other
purposes.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
September 19, 2005
Ms. Murkowski (for herself, Mr. Johnson, Mr. Coleman, Mr. Durbin, Mr.
Dodd, and Mrs. Murray) introduced the following bill; which was read
twice and referred to the Committee on Health, Education, Labor, and
Pensions
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Syndrome prevention and services program, and for other
purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Advancing FASD Research, Prevention,
and Services Act''.
SEC. 2. FINDINGS.
Congress makes the following findings:
(1) Fetal Alcohol Spectrum Disorders are the spectrum of
serious, life-long disorders caused by prenatal exposure to
alcohol, which include Fetal Alcohol Syndrome, Alcohol-Related
Neurodevelopmental Disorder, and Alcohol-Related Birth Defects.
(2) In the decades that have passed since Fetal Alcohol
Syndrome was first recognized in the United States, this fully
preventable condition has continued to affect American children
and families.
(3) Prenatal alcohol exposure can cause brain damage that
produces cognitive and behavioral impairments. Prenatal alcohol
exposure can cause mental retardation or low IQ and
difficulties with learning, memory, attention, and problem-
solving. It can also create problems with mental health and
social interactions.
(4) Prenatal alcohol exposure also can cause growth
retardation, birth defects involving the heart, kidney, vision
and hearing, and a characteristic pattern of facial
abnormalities.
(5) About 13 percent of women report using alcohol during
pregnancy even though there is no known safe level of alcohol
consumption during pregnancy.
(6) Estimates of individuals with Fetal Alcohol Syndrome
vary but are estimated to be between 0.5 and 2.0 per 1,000
births. The prevalence rate is considerably higher for all
Fetal Alcohol Spectrum Disorders: about 10 out of 1,000 births
(1 percent of births).
(7) Prevalence of Fetal Alcohol Spectrum Disorders can be
even higher in certain populations, such as Native Americans,
and in certain areas, such as those characterized by low
socioeconomic status.
(8) Fetal Alcohol Spectrum Disorders pose extraordinary
financial costs to the Nation, including the cost of
specialized health care, education, foster care, incarceration,
job training, and general support services for individuals
affected by Fetal Alcohol Spectrum Disorders.
(9) Lifetime health costs for an individual with Fetal
Alcohol Syndrome average $860,000, and can run as high as
$4,200,000. The direct and indirect economic costs of Fetal
Alcohol Syndrome in the United States were $5,400,000,000 in
2003. Total economic costs would be even higher for all Fetal
Alcohol Spectrum Disorders.
(10) There is a great need for research, surveillance,
prevention, treatment, and support services for individuals
with Fetal Alcohol Spectrum Disorders and their families.
SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.
Section 399H of the Public Health Service Act (48 U.S.C. 280f) is
amended--
(1) by striking the section heading and inserting the
following:
``SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.'';
(2) by redesignating subsections (a) through (d) as
subsections (h) through (k), respectively;
(3) by inserting after the section heading, the following:
``(a) Research on FAS and Related Disorders.--
``(1) In general.--The Secretary, acting through the
Director of the National Institutes of Health and in
coordination with the Interagency Coordinating Committee on
Fetal Alcohol Syndrome, shall--
``(A) establish a research agenda for Fetal Alcohol
Spectrum Disorders; and
``(B) award grants, contracts, or cooperative
agreements to public or private nonprofit entities to
pay all or part of carrying out research under such
agenda.
``(2) Types of research.--In carrying out paragraph (1),
the Secretary, acting through the Director of the National
Institute of Alcohol Abuse and Alcoholism, shall conduct
national and international research in coordination with other
Federal agencies that includes--
``(A) the identification of the mechanisms that
produce the cognitive and behavioral problems
associated with fetal alcohol exposure;
``(B) the development of a neurocognitive phenotype
for Fetal Alcohol Syndrome and Alcohol-Related
Neurodevelopmental Disorder;
``(C) the identification of biological markers that
can be used to indicate fetal alcohol exposure;
``(D) the identification of fetal and maternal risk
factors that increase susceptibility to Fetal Alcohol
Spectrum Disorders;
``(E) the investigation of behavioral and
pharmacotherapies for alcohol-dependent women to
determine new approaches for sustaining recovery;
``(F) the development of scientific-based
therapeutic interventions for individuals with Fetal
Alcohol Spectrum Disorders;
``(G) the development of screening instruments to
identify women who consume alcohol during pregnancy and
the development of standards for measuring, reporting,
and analyzing alcohol consumption patterns in pregnant
women; and
``(H) other research that the Director determines
to be appropriate.
``(3) Study.--The Secretary, acting through the Director of
the National Institute of Mental Health, shall--
``(A) conduct a study on the behavioral disorders
that may be associated with prenatal alcohol exposure;
``(B) not later than 1 year after the date of
enactment of the Advancing FASD Research, Prevention,
and Services Act, submit to Congress a report on the
appropriateness of characterizing Fetal Alcohol
Spectrum Disorders and their secondary behavioral
disorders as mental health disorders; and
``(C) conduct additional research on the
epidemiology of behavior disorders associated with
Fetal Alcohol Spectrum Disorders in collaboration with
the Centers for Disease Control and Prevention.
``(4) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2006
through 2010.
``(b) Surveillance, Identification, and Prevention Activities.--
``(1) In general.--The Secretary, acting through the
Director of the National Center on Birth Defects and
Developmental Disabilities, shall facilitate surveillance,
identification, and prevention of Fetal Alcohol Spectrum
Disorders as provided for in this subsection.
``(2) Surveillance, identification, and prevention.--In
carrying out this subsection, the Secretary shall--
``(A) develop and implement a uniform surveillance
case definition for Fetal Alcohol Syndrome and a
uniform surveillance case definition for Alcohol
Related Neurodevelopmental Disorder;
``(B) develop a comprehensive screening process for
Fetal Alcohol Spectrum Disorders that covers different
age, race, and ethnic groups and is based on the
uniform surveillance case definitions developed under
subparagraph (A);
``(C) disseminate and provide the necessary
training and support for the screening process
developed under subparagraph (B) to--
``(i) hospitals, community health centers,
outpatient programs, and other appropriate
health care providers;
``(ii) incarceration and detainment
facilities;
``(iii) primary and secondary schools;
``(iv) social work and child welfare
offices;
``(v) foster care providers and adoption
agencies;
``(vi) State offices and others providing
services to individuals with disabilities; and
``(vii) other entities that the Secretary
determines to be appropriate;
``(D) conduct activities related to risk factor
surveillance including the annual monitoring and
reporting of alcohol consumption among pregnant women
and women of child bearing age; and
``(E) conduct applied public health prevention
research and implement strategies for reducing alcohol-
exposed pregnancies in women at high risk for alcohol-
exposed pregnancies.
``(3) Authorization of appropriation.--There are authorized
to be appropriated to carry out this subsection, such sums as
may be necessary for each of fiscal years 2006 through 2010.
``(c) Building State FASD Systems.--
``(1) In general.--The Secretary, acting through the
Administrator of the Substance Abuse and Mental Health Services
Administration, shall award grants, contracts, or cooperative
agreements to States for the purpose of establishing or
expanding statewide programs of surveillance, prevention, and
treatment of individuals with Fetal Alcohol Spectrum Disorders.
``(2) Eligibility.--To be eligible to receive a grant,
contract, or cooperative agreement under paragraph (1) a State
shall--
``(A) prepare and submit to the Secretary an
application at such time, in such manner, and
containing such information as the Secretary may
reasonably require;
``(B) develop and implement a statewide strategic
plan for preventing and treating Fetal Alcohol Spectrum
Disorders;
``(C) consult with public and private non-profit
entities with relevant expertise on Fetal Alcohol
Spectrum Disorders within the State, including--
``(i) parent-led groups and other
organizations that support and advocate for
individuals with Fetal Alcohol Spectrum
Disorders; and
``(ii) Indian tribes and tribal
organizations; and
``(D) designate an individual to serve as the
coordinator of the State's Fetal Alcohol Spectrum
Disorders program.
``(3) Strategic plan.--The statewide strategic plan
prepared under paragraph (2)(B) shall include--
``(A) the identification of existing State programs
and systems that could be used to identify and treat
individuals with Fetal Alcohol Spectrum Disorders and
prevent alcohol consumption during pregnancy, such as--
``(i) programs for the developmentally
disabled, the mentally ill, and individuals
with alcohol dependency;
``(ii) primary and secondary educational
systems;
``(iii) judicial systems for juveniles and
adults;
``(iv) child welfare programs and social
service programs; and
``(v) other programs or systems the State
determines to be appropriate;
``(B) the identification of any barriers for
individuals with Fetal Alcohol Spectrum Disorders or
women at risk for alcohol consumption during pregnancy
to access the programs identified under subparagraph
(A); and
``(C) proposals to eliminate barriers to prevention
and treatment programs and coordinate the activities of
such programs.
``(4) Use of funds.--Amounts received under a grant,
contract, or cooperative agreement under paragraph (1) shall be
used for one or more of the following activities:
``(A) Establishing a statewide surveillance system.
``(B) Collecting, analyzing and interpreting data.
``(C) Establishing a diagnostic center.
``(D) Developing, implementing, and evaluating
population-based and targeted prevention programs for
Fetal Alcohol Spectrum Disorders, including public
awareness campaigns.
``(E) Referring individuals with Fetal Alcohol
Spectrum Disorders to appropriate support services.
``(F) Developing and sharing best practices for the
prevention, identification, and treatment of Fetal
Alcohol Spectrum Disorders.
``(G) Providing training to health care providers
on the prevention, identification, and treatment of
Fetal Alcohol Spectrum Disorders.
``(H) Disseminating information about Fetal Alcohol
Spectrum Disorders and the availability of support
services to families of individuals with Fetal Alcohol
Spectrum Disorders.
``(I) Other activities determined appropriate by
the Secretary.
``(5) Multi-state programs.--The Secretary shall permit the
formation of multi-State Fetal Alcohol Spectrum Disorders
programs under this subsection.
``(6) Other contracts and agreements.--A State may carry
out activities under paragraph (4) through contacts or
cooperative agreements with public and private non-profit
entities with a demonstrated expertise in Fetal Alcohol
Spectrum Disorders.
``(7) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for fiscal years 2006 through
2010.
``(d) Promoting Community Partnerships.--
``(1) In general.--The Secretary shall award grants,
contracts, or cooperative agreements to eligible entities to
enable such entities to establish, enhance, or improve
community partnerships for the purpose of collaborating on
common objectives and integrating the services available to
individuals with Fetal Alcohol Spectrum Disorders, such as
surveillance, prevention, treatment, and provision of support
services.
``(2) Eligible entities.--To be eligible to receive a
grant, contract, or cooperative agreement under paragraph (1),
an entity shall--
``(A) be a public or private nonprofit entity,
including--
``(i) a health care provider or health
professional;
``(ii) a primary or secondary school;
``(iii) a social work or child welfare
office;
``(iv) an incarceration or detainment
facility;
``(v) a parent-led group or other
organization that supports and advocates for
individuals with Fetal Alcohol Spectrum
Disorders;
``(vi) an Indian tribe or tribal
organization;
``(vii) any other entity the Secretary
determines to be appropriate; or
``(viii) a consortium of any of the
entities described in clauses (i) through
(vii); and
``(B) prepare and submit to the Secretary an
application at such time, in such manner, and
containing such information as the Secretary may
reasonably require, including assurances that the
entity submitting the application does, at the time of
application, or will, within a reasonable amount of
time from the date of application, include substantive
participation of a broad range of entities that work
with or provide services for individuals with Fetal
Alcohol Spectrum Disorders.
``(3) Activities.--An eligible entity shall use amounts
received under a grant, contract, or cooperative agreement
under this subsection shall carry out 1 or more of the
following activities:
``(A) Identifying and integrating existing programs
and services available in the community for individuals
with Fetal Alcohol Spectrum Disorders.
``(B) Conducting a needs assessment to identify
services that are not available in a community.
``(C) Developing and implementing community-based
initiatives to prevent, diagnose, treat, and provide
support services to individuals with Fetal Alcohol
Spectrum Disorders.
``(D) Disseminating information about Fetal Alcohol
Spectrum Disorders and the availability of support
services.
``(E) Developing and implementing a community-wide
public awareness and outreach campaign focusing on the
dangers of drinking alcohol while pregnant.
``(F) Providing mentoring or other support to
families of individuals with Fetal Alcohol Spectrum
Disorders.
``(G) Other activities determined appropriate by
the Secretary.
``(4) Authorization of appropriation.--There are authorized
to be appropriated to carry out this subsection, such sums as
may be necessary for each of fiscal years 2006 through 2010.
``(e) Development of Best Practices.--
``(1) In general.--The Secretary, in coordination with the
National Task Force on Fetal Alcohol Spectrum Disorders, shall
award grants to States, Indian tribes and tribal organizations,
and nongovernmental organizations for the establishment of
pilot projects to identify and implement best practices for--
``(A) educating children with fetal alcohol
spectrum disorders, including--
``(i) activities and programs designed
specifically for the identification, treatment,
and education of such children; and
``(ii) curricula development and
credentialing of teachers, administrators, and
social workers who implement such programs;
``(B) educating judges, attorneys, child advocates,
law enforcement officers, prison wardens, alternative
incarceration administrators, and incarceration
officials on how to treat and support individuals
suffering from Fetal Alcohol Spectrum Disorders within
the criminal justice system, including--
``(i) programs designed specifically for
the identification, treatment, and education of
those with Fetal Alcohol Spectrum Disorders;
and
``(ii) curricula development and
credentialing within the justice system for
individuals who implement such programs; and
``(C) educating adoption or foster care agency
officials about available and necessary services for
children with fetal alcohol spectrum disorders,
including--
``(i) programs designed specifically for
the identification, treatment, and education of
those with Fetal Alcohol Spectrum Disorders;
and
``(ii) education and training for potential
parents of an adopted child with Fetal Alcohol
Spectrum Disorders.
``(2) Application.--To be eligible for a grant under
paragraph (1), an entity shall prepare and submit to the
Secretary an application at such time, in such manner, and
containing such information as the Secretary may reasonably
require.
``(3) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2006
through 2010.
``(f) Transitional Services.--
``(1) In general.--The Secretary shall award demonstration
grants, contracts, and cooperative agreements to States, Indian
tribes and tribal organizations, and nongovernmental
organizations for the purpose of establishing integrated
systems for providing transitional services for those affected
by prenatal alcohol exposure and evaluating their
effectiveness.
``(2) Application.--To be eligible for a grant, contract,
or cooperative agreement under paragraph (1), an entity shall
prepare and submit to the Secretary an application at such
time, in such manner, and containing such information as the
Secretary may reasonably require.
``(3) Allowable uses.--An entity shall use amounts received
under a grant, contract, or cooperative agreement under
paragraph (1) to--
``(A) provide housing assistance to adults with
Fetal Alcohol Spectrum Disorders;
``(B) provide vocational training and placement
services for adults with Fetal Alcohol Spectrum
Disorders;
``(C) provide medication monitoring services for
adults with Fetal Alcohol Spectrum Disorders; and
``(D) provide training and support to organizations
providing family services or mental health programs and
other organizations that work with adults with Fetal
Alcohol Spectrum Disorders.
``(4) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2006
through 2010.
``(g) Community Health Center Initiative.--
``(1) In general.--The Secretary, acting through the
Administrator of the Health Resources and Services
Administration, shall award grants to community health centers
acting in collaboration with States, Indian tribes, tribal
organizations, and nongovernmental organizations, for the
establishment of a 5-year demonstration program under the
direction of the Interagency Coordinating Committee on Fetal
Alcohol Syndrome to implement and evaluate a program to
increase awareness and identification of Fetal Alcohol Spectrum
Disorders in community health centers and to refer affected
individuals to appropriate support services.
``(2) Application.--To be eligible to receive a grant under
paragraph (1), a community health center shall prepare and
submit to the Administrator an application at such time, in
such manner, and containing such information as the
Administrator may reasonably require.
``(3) Activities.--A community health center shall use
amounts received under a grant under paragraph (1) to--
``(A) provide training for health care providers on
identifying and educating women who are at risk for
alcohol consumption during pregnancy;
``(B) provide training for health care providers on
screening children for Fetal Alcohol Spectrum
Disorders;
``(C) educate health care providers and other
relevant community health center workers on the support
services available for those with Fetal Alcohol
Spectrum Disorders and treatment services available for
women at risk for alcohol consumption during pregnancy;
and
``(D) implement a tracking system that can identify
the rates of Fetal Alcohol Spectrum Disorders by
racial, ethnic, and economic backgrounds.
``(4) Selection of participants.--The Administrator shall
determine the number of community health centers that will
participate in the demonstration program under this subsection
and shall select participants, to the extent practicable, that
are located in different regions of the United States and that
serve a racially and ethnically diverse population.
``(5) Authorization of appropriations.--There are
authorized to be appropriated to carry out this subsection,
such sums as may be necessary for each of fiscal years 2006
through 2010.
``(6) Report to congress.--Not later than 1 year after
completion of the demonstration program under this subsection,
the Administrator shall prepare and submit to Congress a report
on the results of the demonstration program, including--
``(A) changes in the number of women screened for
and identified as at risk for alcohol consumption
during pregnancy;
``(B) changes in the number of individuals
identified as having a Fetal Alcohol Spectrum Disorder;
and
``(C) changes in the number of alcohol-consuming
pregnant women and individuals with Fetal Alcohol
Spectrum Disorders who were referred to appropriate
services.'';
(4) in subsection (h)(1) (as so redesignated)--
(A) in subparagraph (C), by striking ``and'' after
the semicolon;
(B) in subparagraph (D), by adding ``and'' after
the semicolon; and
(C) by adding at the end the following:
``(E) national public service announcements to
raise public awareness of the risks associated with
alcohol consumption during pregnancy with the purpose
of reducing the prevalence of Fetal Alcohol Spectrum
Disorders, that shall--
``(i) be conducted by relevant Federal
agencies under the coordination of the
Interagency Coordinating Committee on Fetal
Alcohol Syndrome;
``(ii) be developed by the appropriate
Federal agencies, as determined by the
Interagency Coordinating Committee on Fetal
Alcohol Syndrome taking into consideration the
expertise and experience of other relevant
Federal agencies, and shall test and evaluate
the public service announcement's effectiveness
prior to broadcasting the announcements
nationally;
``(iii) be broadcast through appropriate
media outlets, including television or radio,
in a manner intended to reach women at risk of
alcohol consumption during pregnancy; and
``(iv) be measured prior to broadcast of
the national public service announcements to
provide baseline data that will be used to
evaluate the effectiveness of the
announcements.''; and
(5) in subsection (k) (as so redesignated)--
(A) in paragraph (1), by striking ``National Task
Force on Fetal Alcohol Syndrome and Fetal Alcohol
Effect'' and inserting ``National Task Force on Fetal
Alcohol Spectrum Disorders'';
(B) in paragraph (3)--
(i) in subparagraph (B), by striking
``and'' after the semicolon;
(ii) in subparagraph (C), by adding ``and''
after the semicolon; and
(iii) by adding at the end the following:
``(D) develop, in collaboration with the
Interagency Coordinating Committee on Fetal Alcohol
Syndrome, a report that identifies and describes the 10 most important
actions that must be taken to reduce prenatal alcohol exposure and all
its adverse outcomes, and that shall--
``(i) describe the state of the current
epidemiology of Fetal Alcohol Spectrum
Disorders, risk factors, and successful
approaches in policy and services that have
reduced alcohol-exposed pregnancies and
outcomes;
``(ii) identify innovative approaches that
have worked in related areas such as tobacco
control or HIV prevention that may provide
models for Fetal Alcohol Spectrum Disorders
prevention;
``(iii) recommend short-term and long-term
action plans for achieving the Healthy 2010
Objectives for the United States, such as
increasing abstinence from alcohol among
pregnant women and reducing the occurrence of
Fetal Alcohol Syndrome; and
``(iv) recommend in coordination with the
National Institute on Mental Health whether
Fetal Alcohol Syndrome and other prenatal
alcohol disorders, or a subset of these
disorders, should be included in the Diagnostic
and Statistical Manual of Mental Disorders.'';
and
(C) by striking ``Fetal Alcohol Syndrome and Fetal
Alcohol Effect'' each place that such appears and
inserting ``Fetal Alcohol Spectrum Disorders''.
SEC. 4. COORDINATION AMONG FEDERAL ENTITIES.
Part O of title III of the Public Health Service Act (42 U.S.C.
280f et seq.) is amended by adding at the end the following:
``SEC. 399K-1. COORDINATION AMONG FEDERAL ENTITIES.
``(a) Interagency Coordinating Committee on Fetal Alcohol
Syndrome.--The Secretary, acting through the Director of the National
Institute on Alcohol Abuse and Alcoholism, shall provide for the
continuation of the Interagency Coordinating Committee on Fetal Alcohol
Syndrome so that such Committee may--
``(1) coordinate activities conducted by the Federal
Government on Fetal Alcohol Spectrum Disorders, including
convening meetings, establishing work groups, sharing
information, and facilitating and promoting collaborative
projects among Federal agencies; and
``(2) develop, in consultation with the National Task Force
on Fetal Alcohol Spectrum Disorders, priority areas for years
2006 through 2010 to guide Federal programs and activities
related to Fetal Alcohol Spectrum Disorders.
``(b) Coordination Among Federal Entities.--
``(1) In general.--The Comptroller General of the United
States shall evaluate and make recommendations regarding the
appropriate roles and responsibilities of Federal entities with
respect to programs and activities related to Fetal Alcohol
Spectrum Disorders.
``(2) Covered entities.--The Federal entities under
paragraph (1) shall include entities within the National
Institutes of Health, the Centers for Disease Control and
Prevention, the Substance Abuse and Mental Health Services
Administration, the Health Resources and Services
Administration, the Indian Health Service, the Agency for
Healthcare Research and Quality, the Interagency Coordinating
Committee on Fetal Alcohol Syndrome, the National Task Force on
Fetal Alcohol Spectrum Disorders, as well as the Office of
Special Education and Rehabilitative Services in the Department
of Education and the Office of Juvenile Justice and Delinquency
Prevention in the Department of Justice.
``(3) Evaluation.--The evaluation conducted by the
Comptroller General under paragraph (1) shall include--
``(A) an assessment of the current roles and
responsibilities of Federal entities with programs and
activities related to Fetal Alcohol Spectrum Disorders;
and
``(B) an assessment of whether there is duplication
in programs and activities, conflicting roles and
responsibilities, or lack of coordination among Federal
entities.
``(4) Recommendation.--The Comptroller General shall
provide recommendations on the appropriate roles and
responsibilities of the Federal entities described in paragraph
(2) in order to maximize the effectiveness of Federal programs
and activities related to Fetal Alcohol Spectrum Disorders.
``(5) Completion.--Not later than 1 year after the date of
enactment of the Advancing FASD Research, Prevention, and
Services Act, the Comptroller General shall complete the
evaluation and submit to Congress a report on the findings and
recommendations made as a result of the evaluation.''.
SEC. 5. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL SYNDROME.
Section 519C(b) of the Public Health Service Act (42 U.S.C. 290bb-
25c(b)) is amended--
(1) in paragraph (11), by striking ``and'' after the
semicolon;
(2) by redesignating paragraph (12) as paragraph (15); and
(3) by inserting after paragraph (11), the following:
``(12) provide respite care for caretakers of individuals
with Fetal Alcohol Syndrome and other prenatal alcohol-related
disorders;
``(13) recruit and train mentors for adolescents with Fetal
Alcohol Syndrome and other prenatal alcohol-related disorders;
``(14) provide educational and supportive services to
families of individuals with Fetal Alcohol Spectrum Disorders;
and''.
SEC. 6. PREVENTION, INTERVENTION, AND SERVICES IN THE EDUCATION SYSTEM.
The Secretary of Education shall direct the Office of Special
Education and Rehabilitative Services to--
(1) implement screening procedures and conduct training on
a nationwide Fetal Alcohol Spectrum Disorders surveillance
campaign for the educational system in collaboration with the
efforts of the National Center on Birth Defects and
Developmental Disabilities under section 399H(b) of the Public
Health Service Act (as added by this Act);
(2) introduce curricula previously developed by the
National Center on Birth Defects and Developmental Disabilities
and the Substance Abuse and Mental Health Services
Administration on how to most effectively educate and support
children with Fetal Alcohol Spectrum Disorders in both special
education and traditional education settings, and investigate
incorporating information about the identification, prevention,
and treatment of the Disorders into teachers' credentialing
requirements;
(3) integrate any special techniques on how to deal with
Fetal Alcohol Spectrum Disorders children into parent-teacher
or parent-administrator interactions, including after-school
programs, special school services, and family aid programs;
(4) collaborate with other Federal agencies to introduce a
standardized educational unit within schools' existing sexual
and health education curricula, or create one if needed, on the
deleterious effects of prenatal alcohol exposure; and
(5) organize a peer advisory network of adolescents in
schools to discourage the use of alcohol while pregnant or
considering getting pregnant.
SEC. 7. PREVENTION, INTERVENTION, AND SERVICES IN THE JUSTICE SYSTEM.
The Attorney General shall direct the Office of Juvenile Justice
and Delinquency Prevention to--
(1) implement screening procedures and conduct training on
a nationwide Fetal Alcohol Spectrum Disorders surveillance
campaign for the justice system in collaboration with the
efforts of the National Center on Birth Defects and
Developmental Disabilities under section 399H(b) of the Public
Health Service Act (as added by this Act);
(2) introduce training curricula, in collaboration with the
National Center on Birth Defects and Developmental Disabilities
and the Substance Abuse and Mental Health Services
Administration, on how to most effectively identify and
interact with individuals with Fetal Alcohol Spectrum Disorders
in both the juvenile and adult justice systems, and investigate
incorporating information about the identification, prevention,
and treatment of the disorders into justice professionals'
credentialing requirements;
(3) promote the tracking of individuals entering the
juvenile justice system with at-risk backgrounds that indicates
them as high probability for having a Fetal Alcohol Spectrum
Disorder, especially those individuals whose mothers have a
high record of drinking during pregnancy as reported by the
appropriate child protection agency;
(4) educate judges, attorneys, child advocates, law
enforcement officers, prison wardens, alternative incarceration
administrators, and incarceration officials on how to treat and
support individuals suffering from Fetal Alcohol Spectrum
Disorders within the criminal justice system, including--
(A) programs designed specifically for the
identification, treatment, and education of such
children; and
(B) curricula development and credentialing of
teachers, administrators, and social workers who
implement such programs;
(5) conduct a study on the inadequacies of how the current
system processes children with certain developmental delays and
subsequently develop alternative methods of incarceration and
treatment that are more effective for youth offenders
identified to have a Fetal Alcohol Spectrum Disorder; and
(6) develop transition programs for individuals with Fetal
Alcohol Spectrum Disorders who are released from incarceration.
SEC. 8. MISCELLANEOUS PROVISIONS.
(a) Authorization of Appropriations.--Section 399J of the Public
Health Service Act (42 U.S.C. 280f-2) is amended by striking ``the
part'' and all that follows through the period and inserting
``subsections (h) through (k) of section 399H, $27,000,000 for each of
fiscal years 2006 through 2010''.
(b) Repeal of Sunset.--Section 399K of the Public Health Service
Act (42 U.S.C. 280f-3) is repealed.
<all>
Introduced in Senate
Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S10189-10193)
Sponsor introductory remarks on measure. (CR S9249-9250)
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