Breast Cancer Education and Awareness Requires Learning Young Act of 2009 or EARLY Act - Amends the Public Health Service Act to direct the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to conduct a national evidence-based education campaign: (1) to increase public awareness regarding the threats posed by breast cancer to young women, including the particular risks faced by certain ethnic and cultural groups; and (2) focusing on awareness of risk factors and achieving early detection through community-centered informational forums, public service advertisements, and media campaigns.
Directs the Secretary to award grants to entities to establish national multimedia campaigns that: (1) will encourage young women to be aware of their personal risk factors, strategies for increasing early detection and self awareness, evidence based preventative lifestyle changes, and other appropriate breast cancer early detection and risk reduction strategies; (2) will encourage young women of specific higher-risk populations to talk to their medical practitioners about those risks and methods for appropriate screening and surveillance; and (3) may include advertising through specified media.
Requires the Secretary, acting through the Director, to: (1) establish an advisory committee to assist in creating and conducting the public education campaign; (2) conduct an education campaign to increase awareness among health care professionals; and (3) conduct prevention research.
Directs the Secretary to award grants to organizations and institutions to provide to young women diagnosed with breast cancer substantive assistance and health information from credible sources on: (1) education and counseling regarding fertility preservation; (2) social, emotional, psychosocial, financial, lifestyle, and caregiver support; (3) familial risk factors; and (4) risk reduction strategies to reduce recurrence or metastasis.
[Congressional Bills 111th Congress]
[From the U.S. Government Printing Office]
[H.R. 1740 Introduced in House (IH)]
111th CONGRESS
1st Session
H. R. 1740
To amend the Public Health Service Act to increase awareness of the
risks of breast cancer in young women and provide support for young
women diagnosed with breast cancer.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
March 26, 2009
Ms. Wasserman Schultz (for herself, Mrs. Myrick, Ms. DeLauro, Mrs.
Christensen, Ms. Bean, Ms. Pelosi, Ms. Bordallo, Mr. Serrano, Mrs.
Capps, Mr. Weiner, Mr. Wexler, Mr. Tonko, Mr. Davis of Alabama, Mr.
Sablan, Ms. McCollum, Mr. Berman, Ms. Ros-Lehtinen, Mr. Baca, Mr.
Hastings of Florida, Mr. Meek of Florida, Ms. Castor of Florida, Mr.
Lincoln Diaz-Balart of Florida, Mr. Klein of Florida, Ms. Fudge, Ms.
Schakowsky, Ms. Jackson-Lee of Texas, Mr. Maffei, Mr. Larson of
Connecticut, Ms. Sutton, Mr. Cummings, Mr. Burton of Indiana, Mr. Poe
of Texas, Ms. Lee of California, Mr. Moore of Kansas, Mr. Mario Diaz-
Balart of Florida, Ms. Markey of Colorado, Ms. Clarke, Mr. Perriello,
Ms. Kosmas, Ms. Matsui, Mr. Gene Green of Texas, Ms. Hirono, Mrs.
McCarthy of New York, Mr. Boren, Mrs. Davis of California, Mr. Nadler
of New York, Mrs. Dahlkemper, Ms. Schwartz, Ms. Edwards of Maryland,
Ms. Kilpatrick of Michigan, Mr. Murtha, Ms. Baldwin, Ms. Harman, Mrs.
Emerson, Mr. Hodes, Mr. Hall of New York, Mr. Fattah, Mrs. Tauscher,
Ms. Norton, Mr. Conyers, Mr. Ryan of Ohio, Mr. Jones, Mr. Braley of
Iowa, Ms. Titus, Mr. Van Hollen, Mr. Arcuri, Mr. Welch, Ms. Herseth
Sandlin, Mr. Nye, Mr. Carney, Mrs. Kirkpatrick of Arizona, Mr. Doggett,
Ms. Kilroy, Mr. Barrow, Ms. Linda T. Sanchez of California, Mr. Walz,
Mr. Donnelly of Indiana, Mr. Becerra, Mr. Schiff, Mr. Schauer, Mr.
Hinchey, Mrs. Lowey, Mr. Perlmutter, Mr. Ellison, Mr. Teague, Mr.
Cohen, Mr. Doyle, Mr. Mitchell, Mr. Sestak, Mr. McMahon, Mr. Olver, Mr.
Shuler, Mr. Thompson of California, Ms. Kaptur, Mr. Massa, Mr. Reyes,
Mrs. Maloney, Mr. Waxman, Ms. Shea-Porter, Mr. Boyd, Mr. Dicks, Mr.
LaTourette, Mr. Obey, Mr. Wamp, Mr. Price of North Carolina, Mr.
Manzullo, Mrs. Bono Mack, Mr. Posey, Mr. Stearns, Mr. Tierney, Mr.
Issa, Mr. Mack, Mr. Scott of Georgia, Mr. Clyburn, Mr. Childers, Mr.
Cleaver, Mr. Lujan, Mr. Foster, Mr. Kanjorski, Ms. Speier, Mr. Hoyer,
Ms. Richardson, Mr. Patrick J. Murphy of Pennsylvania, Mr. Murphy of
Connecticut, Mr. Boccieri, Mr. Wilson of Ohio, Mr. Neal of
Massachusetts, Mr. Pallone, Mr. Kratovil, Mr. Al Green of Texas, Mr.
Putnam, Mrs. Halvorson, Mr. Kind, Mr. Kildee, Mr. Kennedy, Mr. Boozman,
Mrs. Biggert, Mr. Lance, Mrs. McMorris Rodgers, Mr. Yarmuth, Mr.
Shimkus, Mr. Carnahan, Mr. Loebsack, Mr. Rehberg, Mr. Alexander, Mr.
Heinrich, Mr. Sires, Mr. Ellsworth, Mr. Matheson, Mr. Taylor, Mr.
Burgess, Mrs. Blackburn, Ms. Ginny Brown-Waite of Florida, Mr. Barton
of Texas, Mr. Clay, Mr. Honda, Mr. Frank of Massachusetts, Ms. Woolsey,
Mr. Fortenberry, Mr. Crenshaw, Mr. Sam Johnson of Texas, Mr. Culberson,
Mr. Marchant, Mr. Lucas, Mr. Smith of Texas, Mr. Kirk, Mrs. Capito, Mr.
Gonzalez, Mr. Faleomavaega, Mr. Latham, Mr. Cantor, Ms. Fallin, Ms.
Waters, Mr. Melancon, Ms. Zoe Lofgren of California, Mr. Oberstar, Mr.
Rahall, Mr. Pastor of Arizona, Mr. Himes, Mr. Buyer, Mr. Payne, Mr.
Costello, Mr. Turner, and Mr. Price of Georgia) introduced the
following bill; which was referred to the Committee on Energy and
Commerce
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to increase awareness of the
risks of breast cancer in young women and provide support for young
women diagnosed with breast cancer.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Breast Cancer Education and
Awareness Requires Learning Young Act of 2009'' or ``EARLY Act''.
SEC. 2. YOUNG WOMEN'S BREAST CANCER AWARENESS AND SUPPORT.
Title III of the Public Health Service Act (42 U.S.C. 241 et seq.)
is amended by adding at the end the following:
``PART S--PROGRAMS RELATING TO BREAST CANCER
``SEC. 399HH. YOUNG WOMEN'S BREAST CANCER AWARENESS AND SUPPORT.
``(a) Public Education Campaign.--
``(1) In general.--The Secretary, acting through the
Director of the Centers for Disease Control and Prevention,
shall conduct a national evidence-based education campaign--
``(A) to increase public awareness regarding the
threats posed by breast cancer to young women of all
ethnic and cultural backgrounds, including the
particular risks faced by certain ethnic and cultural
groups; and
``(B) focusing on awareness of risk factors of
breast cancer among young women and achieving early
detection of breast cancer among young women through
community-centered informational forums, public service
advertisements, and media campaigns.
``(2) Authorized activities.--In conducting the education
campaign under paragraph (1), the Secretary may--
``(A) make public announcements targeted towards
young women with the goal of educating them that breast
cancer occurs in young women and the steps they can
take to recognize their individual risk factors and
ensure early detection of breast cancer, ensuring that
such messaging is age-appropriate;
``(B) provide education, through written materials,
identifying evidence based methods to lower the risk of
breast cancer in young women through changes in
lifestyle including diet, exercise, and environmental
factors;
``(C) conduct other activities determined by the
Secretary to promote educational awareness, early
detection, and risk-reducing practices among young
women and increase the number of young women with
breast cancer warning signs who seek immediate care;
``(D) award grants, contracts, or cooperative
agreements to appropriate State agencies to carry out
secondary school and university education campaigns,
focusing on breast cancer awareness among young women;
``(E) develop and distribute to young women,
physicians, and other appropriate health care
professionals, educational materials--
``(i) designed for young women;
``(ii) relating to particular risk factors
for breast cancer in women under the age of 40;
``(iii) identifying methods for increasing
early detection, including clinical breast
exams, blood component analysis, and where
there is a increased risk of breast cancer due
to ethnic background, genetic mutations, or
other risk factors, other predictive tools such
as genetic counseling and testing;
``(iv) identifying methods for increasing
self awareness, including breast self exams,
learning how to perform such exams, and knowing
the signs of breast malignancies;
``(v) identifying evidenced based methods
to lower the risk of breast cancer through
changes in lifestyle, including diet, exercise,
and environmental factors;
``(vi) identifying available treatment
options for breast cancer; and
``(vii) for young women who have been
diagnosed with breast cancer, health
information from credible sources that provides
information on--
``(I) fertility preservation;
``(II) support, including social,
emotional, psychosocial, financial,
lifestyle, and caregiver support;
``(III) familial risk factors; and
``(IV) risk reduction strategies to
reduce recurrence or metastasis; and
``(F) carry out a health education program targeted
to specific higher-risk populations of young women
based on race, ethnicity, level of acculturation, and
family history, including the African-American and
Ashkenazi Jewish populations under 40 years of age.
``(3) Media campaign.--In conducting the education campaign
under paragraph (1), the Secretary shall award grants to
entities to establish national multimedia campaigns oriented to
young women that--
``(A) will encourage young women to be aware of--
``(i) their personal risk factors,
including by talking to their medical
practitioner about those risks;
``(ii) strategies for increasing early
detection, including clinical breast exams, and
where there is a increased risk of breast
cancer due to ethnic background, genetic
mutations, or other risk factors, other
predictive tools such as genetic counseling and
testing;
``(iii) strategies for increasing self
awareness, including doing breast self exams,
learning how to perform such exams, and knowing
the signs of breast malignancies;
``(iv) evidence based preventative
lifestyle changes, including eating healthily
and maintaining a healthy weight; and
``(v) other breast cancer early detection
and risk reduction strategies determined
appropriate by the Secretary;
``(B) will encourage young women of specific
higher-risk populations based on race, ethnicity, level
of acculturation, and family history, including the
African-American and Ashkenazi Jewish populations under
40 years of age to talk to their medical practitioners
about those risks and methods for appropriate screening
and surveillance, including available genetic testing
and counseling; and
``(C) may include advertising through television,
radio, print media, billboards, posters, all forms of
existing and emerging social networking media, other
Internet media, and any other media determined
appropriate by the Secretary.
``(4) Advisory committee.--.
``(A) Establishment.--Not later than 60 days after
the date of the enactment of this section, the
Secretary, acting through the Director of the Centers
for Disease Control and Prevention, shall establish an
advisory committee to assist in creating and conducting
the education campaign under paragraph (1).
``(B) Membership.--The Secretary, acting through
the Director of the Centers for Disease Control and
Prevention, shall appoint to the advisory committee
under subparagraph (A) such members as deemed necessary
to properly advise the Secretary, and shall include
organizations and individuals with expertise in breast
cancer prevention, diagnosis, genetic screening and
counseling, treatment, and rehabilitation in young
women.
``(b) Health Care Professional Education Campaign.--
``(1) In general.--The Secretary, acting through the
Director of the Centers for Disease Control and Prevention, and
in consultation with the Administrator of the Health Resources
and Services Administration, shall conduct an education
campaign to increase awareness among physicians and other
health care professionals--
``(A) relating to the risk factors, risk reduction
strategies, early diagnosis and treatment of breast
cancer in young women;
``(B) on when to refer patients to a health care
provider with genetics expertise; and
``(C) on how to provide counseling that addresses
long-term survivorship and health concerns of young
women diagnosed with breast cancer.
``(2) Materials.--The education campaign under paragraph
(1) may include the distribution of print, video, and Web-based
materials on assisting physicians and other health care
professionals in--
``(A) identifying generally the risk factors and
early warning signs and symptoms of breast cancer
specific to women under the age of 40 and the specific
risk factors that would require increased monitoring;
``(B) counseling patients on the benefits of
evidence based healthy lifestyles which reduce the
risks of breast cancer;
``(C) counseling patients on the importance of
consistent breast self exams to facilitate breast self
awareness and teaching patients how to perform such
exams;
``(D) understanding the importance of early
diagnosis, including teaching young women the symptoms
of breast cancer and early detection practices,
including clinical breast exams, blood component
analysis, genetic counseling and testing where
appropriate, and other strategies determined to be
appropriate by the Secretary; and
``(E) the unique long-term effects faced by young
women with breast cancer that will need to be addressed
over their lifetimes, including--
``(i) re-entry into the workforce or
school;
``(ii) infertility as a result of
treatment;
``(iii) neuro-cognitive effects;
``(iv) important effects of cardiac,
vascular, muscle, and skeletal complications;
and
``(v) secondary malignancies.
``(c) Prevention Research Activities.--The Secretary, acting
through the Director of the Centers for Disease Control and Prevention,
shall conduct prevention research on breast cancer in younger women,
including the following:
``(1) Behavioral and other research on the impact of breast
cancer diagnosis on young women.
``(2) Formative research to assist with the development of
educational messages and information for the public, targeted
populations, and their families about breast cancer.
``(3) Surveys of physician and public knowledge, attitudes,
and practices about breast cancer prevention and control in
high-risk populations.
``(d) Support for Young Women Diagnosed With Breast Cancer.--
``(1) In general.--The Secretary shall award grants to
organizations and institutions to provide health information
from credible sources and substantive assistance directed to
young women diagnosed with breast cancer on--
``(A) education and counseling regarding fertility
preservation;
``(B) support, including social, emotional,
psychosocial, financial, lifestyle, and caregiver
support;
``(C) familial risk factors; and
``(D) risk reduction strategies to reduce
recurrence or metastasis.
``(2) Priority.--In making grants under paragraph (1), the
Secretary shall give priority to applicants that deal
specifically with young women and breast cancer.
``(e) No Duplication of Effort.--In conducting an education
campaign or other program under subsections (a), (b), (c), or (d), the
Secretary shall avoid duplicating other existing Federal breast cancer
education efforts.
``(f) Measurement; Reporting.--The Secretary, acting through the
Director of the Centers for Disease Control and Prevention, shall--
``(1) measure young women's awareness regarding breast
cancer, including knowledge of specific risk factors and early
warning signs, and young women's proactive efforts at early
detection, including seeking out information on risk-reducing
lifestyle choices, the number or percentage of young women
receiving regular clinical breast exams, the number or
percentage of young women who perform breast self exams, and
the frequency of such exams, before the implementation of this
section;
``(2) establish quantitative benchmarks to measure the
impact of activities under this section;
``(3) not less than every 3 years, measure the impact of
such activities; and
``(4) submit reports to the Congress on the results of such
measurements.
``(g) Definitions.--In this section--
``(1) the term `State' means each of the several States,
the District of Columbia, the Commonwealth of Puerto Rico,
American Samoa, Guam, the Commonwealth of the Northern Mariana
Islands, and the United States Virgin Islands; and
``(2) the term `young women' means women 15 to 39 years of
age.
``(h) Authorization of Appropriations.--To carry out this section,
there are authorized to be appropriated $9,000,000 for each of the
fiscal years 2010 through 2014.''.
<all>
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
Subcommittee Hearings Held.
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