Scleroderma Research and Awareness Act of 2013 - Amends the Public Health Service Act to authorize the Director of the National Institutes of Health (NIH) to expand, intensify, and coordinate NIH activities relating to scleroderma, with particular emphasis on: (1) research focused on the etiology of scleroderma and the development of new treatment options; (2) clinical research to evaluate new treatments options; and (3) basic research on the relationship between scleroderma and secondary conditions, such as pulmonary hypertension, gastroparesis, Raynaud's phenomenon, and Sjogren's Syndrome.
Authorizes the Secretary of Health and Human Services (HHS) to carry out an educational campaign to increase public awareness of scleroderma. Permits print, video, and web-based materials distributed through this campaign to include: (1) basic information on scleroderma and its symptoms; and (2) information on the incidence and prevalence of scleroderma, diseases and conditions affiliated with scleroderma, or the importance of early diagnosis and treatment of scleroderma.
[Congressional Bills 113th Congress]
[From the U.S. Government Publishing Office]
[H.R. 1429 Introduced in House (IH)]
113th CONGRESS
1st Session
H. R. 1429
To expand the research and awareness activities of the National
Institute of Arthritis and Musculoskeletal and Skin Diseases and the
Centers for Disease Control and Prevention with respect to scleroderma,
and for other purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
April 9, 2013
Mrs. Capps (for herself and Mr. King of New York) introduced the
following bill; which was referred to the Committee on Energy and
Commerce
_______________________________________________________________________
A BILL
To expand the research and awareness activities of the National
Institute of Arthritis and Musculoskeletal and Skin Diseases and the
Centers for Disease Control and Prevention with respect to scleroderma,
and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Scleroderma Research and Awareness
Act of 2013''.
SEC. 2. NATIONAL INSTITUTE OF ARTHRITIS AND MUSCULOSKELETAL AND SKIN
DISEASES; SCLERODERMA RESEARCH EXPANSION.
Part B of title IV of the Public Health Service Act (42 U.S.C. 284
et seq.) is amended by adding at the end the following:
``SEC. 409K. SCLERODERMA RESEARCH.
``The Director of NIH may expand, intensify, and coordinate the
activities of the National Institutes of Health with respect to
scleroderma, with particular emphasis on the following:
``(1) Research focused on the etiology of scleroderma and
the development of new treatment options.
``(2) Clinical research to evaluate new treatments options.
``(3) Basic research on the relationship between
scleroderma and secondary conditions such as pulmonary
hypertension, gastroparesis, Raynaud's phenomenon, Sjogren's
Syndrome, and other diseases as determined by the Director.''.
SEC. 3. PROMOTING PUBLIC AWARENESS OF SCLERODERMA.
Part P of title III of the Public Health Service Act (42 U.S.C.
280g et seq.) is amended by adding at the end the following:
``SEC. 399V-6. PROMOTING PUBLIC AWARENESS OF SCLERODERMA.
``The Secretary may carry out an educational campaign to increase
public awareness of scleroderma. Print, video, and Web-based materials
distributed through this campaign may include--
``(1) basic information on scleroderma and its symptoms;
and
``(2) information on--
``(A) the incidence and prevalence of scleroderma;
``(B) diseases and conditions affiliated with
scleroderma; or
``(C) the importance of early diagnosis and
treatment of scleroderma.''.
<all>
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
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