Stillbirth Awareness and Research Act of 2013 - Amends the Public Health Service Act to direct the Secretary of Health and Human Services (HHS), acting through the Director of the Centers for Disease Control and Prevention (CDC), to establish and maintain a scientific registry of stillbirths in the United States, which shall include for each stillbirth information on the stillborn fetus and the mother's health and pregnancy as collected and submitted by states on the U.S. Standard Report of Fetal Death.
Requires the Secretary to: (1) provide for the development of a standard definition of stillbirth and a standard protocol for stillbirth data collection and surveillance, and (2) carry out a national campaign to increase public and state awareness of such definition and protocol and public awareness and knowledge of stillbirths.
Expresses the sense of Congress that the Director of the National Institutes of Health (NIH) should increase the allocation of funds and other resources for stillbirth research.
[Congressional Bills 113th Congress]
[From the U.S. Government Publishing Office]
[H.R. 2365 Introduced in House (IH)]
113th CONGRESS
1st Session
H. R. 2365
To amend the Public Health Service Act to provide for the national
collection of data on stillbirths in a standardized manner, and for
other purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
June 13, 2013
Mr. King of New York (for himself and Mr. McCaul) introduced the
following bill; which was referred to the Committee on Energy and
Commerce
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to provide for the national
collection of data on stillbirths in a standardized manner, and for
other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Stillbirth Awareness and Research
Act of 2013''.
SEC. 2. NATIONAL STILLBIRTH REGISTRY.
Part B of title III of the Public Health Service Act (42 U.S.C. 243
et seq.) is amended by inserting after section 317T the following:
``SEC. 317U. NATIONAL STILLBIRTH REGISTRY.
``(a) Establishment.--For the purposes described in subsection (b),
the Secretary, acting through the Director of the Centers for Disease
Control and Prevention, shall, by grant or contract, establish and
maintain a scientific registry of stillbirths in the United States (in
this section referred to as the `registry').
``(b) Purposes.--The purposes of the registry are--
``(1) to provide a national repository for reporting and
maintaining in a consistent manner data on stillbirths; and
``(2) to make such data available for research on the
causes and prevention of stillbirths.
``(c) Content.--The registry shall include, with respect to each
stillbirth, information on the stillborn fetus and the mother's health
and pregnancy as collected and submitted by States on the U.S. Standard
Report of Fetal Death. In submitting such information, the Director of
the Centers for Disease Control and Prevention shall require States to
use the standard definition of stillbirth and the standard protocol for
stillbirth data collection and surveillance as determined pursuant to
subsection (d).
``(d) Determination of Standard Stillbirth Definition and
Protocol.--
``(1) In general.--For purposes of this section, the
Secretary shall provide for the development of the following:
``(A) A standard definition of stillbirth.
``(B) A standard protocol for stillbirth data
collection and surveillance.
``(2) Consultation.--The Secretary shall ensure that the
standard definition and protocol described in paragraph (1) are
developed under such paragraph in a manner that ensures the
consultation of representatives of health care organizations,
State and local governments, and other interested entities
specified by the Secretary.''.
SEC. 3. SENSE OF CONGRESS ON NIH FUNDING FOR STILLBIRTH RESEARCH.
It is the sense of the Congress that the Director of the National
Institutes of Health should increase the allocation of funds and other
resources for stillbirth research.
SEC. 4. NATIONAL PUBLIC AWARENESS CAMPAIGN.
(a) In General.--The Secretary of Health and Human Services shall
carry out a national campaign to increase public awareness and
knowledge of stillbirths and public and State awareness of the standard
stillbirth definition and standard protocol for stillbirth data
collection and surveillance under section 317U of the Public Health
Service Act, as added by section 2.
(b) Measures To Reduce the Incidence of Stillbirths.--Activities
under the national campaign under subsection (a) shall include--
(1) the dissemination of information on measures for
mothers to maintain a healthy pregnancy and assess fetal
health;
(2) the dissemination of information on good prenatal care
practices such as not drinking alcohol or smoking; and
(3) the promotion of the use of proactive steps to monitor
(or ascertain) a baby's well-being, including the monitoring of
fetal movement beginning at approximately 28 weeks into the
pregnancy.
SEC. 5. AUTHORIZATION OF APPROPRIATIONS.
(a) In General.--To carry out this Act and the amendment made by
this Act, there is authorized to be appropriated $5,000,000 for each of
fiscal years 2014 through 2018.
(b) Corresponding Reduction.--The aggregate amount authorized to be
appropriated by other provisions of law to the Centers for Disease
Control and Prevention for business services support is reduced by
$5,000,000 for each of fiscal years 2014 through 2018.
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Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
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