This resolution supports the designation of National Polycystic Kidney Disease Awareness Day and recognizes the need for additional research to find a cure.
[Congressional Bills 116th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1142 Introduced in House (IH)]
<DOC>
116th CONGRESS
2d Session
H. RES. 1142
Expressing support for the designation of September 4, 2020, as
``National Polycystic Kidney Disease Awareness Day'', and raising
awareness and understanding of polycystic kidney disease.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
September 23, 2020
Mr. Cleaver (for himself and Mr. Luetkemeyer) submitted the following
resolution; which was referred to the Committee on Energy and Commerce
_______________________________________________________________________
RESOLUTION
Expressing support for the designation of September 4, 2020, as
``National Polycystic Kidney Disease Awareness Day'', and raising
awareness and understanding of polycystic kidney disease.
Whereas designating September 4, 2020, as ``National Polycystic Kidney Disease
Awareness Day'' will raise public awareness and understanding of
polycystic kidney disease, one of the most prevalent genetic kidney
disorders, which affects approximately 500,000 people in the United
States;
Whereas National Polycystic Kidney Disease Awareness Day will help to foster an
understanding of the impact polycystic kidney disease has on individuals
and their families;
Whereas polycystic kidney disease is a progressive, genetic disorder of the
kidneys that causes damage to the kidneys and the cardiovascular,
endocrine, hepatic, and gastrointestinal organ systems;
Whereas polycystic kidney disease affects the health and finances of
individuals, and equally affects individuals of all ages, races,
ethnicities, and sexes;
Whereas, of the individuals diagnosed with polycystic kidney disease,
approximately 10 percent have no family history of the disease, with the
disease developing as a spontaneous mutation;
Whereas there are very few treatments and no cure for polycystic kidney disease,
which is 1 of the 4 leading causes of kidney failure in the United
States;
Whereas almost 50 percent of individuals with polycystic kidney disease
experience kidney failure by age 60;
Whereas friends, loved ones, spouses, and caregivers of individuals with
polycystic kidney disease can assist with the challenges created by
polycystic kidney disease, including by helping such individuals
maintain a healthy lifestyle and make regular visits to their health
care providers;
Whereas the severity of the symptoms of polycystic kidney disease and limited
public awareness of the disease may cause individuals to forgo regular
visits to their physicians or avoid following the health recommendations
of their doctors, which experts suggest could help prevent further
complications should kidney failure occur;
Whereas individuals who have chronic, life-threatening diseases like polycystic
kidney disease may experience depression;
Whereas the PKD Foundation and its more than 35,000 patient and family advocates
around the United States are dedicated to--
(1) conducting research to find treatments and a cure for polycystic
kidney disease;
(2) fostering public awareness and understanding of polycystic kidney
disease;
(3) educating individuals and their families about the disease to
improve their treatment and care; and
(4) providing support, including by sponsoring the annual ``Walk for
PKD'', to raise funds for polycystic kidney disease research, education,
advocacy, and awareness; and
Whereas, on September 4, 2020, the PKD Foundation partnered with sister
organizations in Canada, Australia, and other countries to increase
international awareness of polycystic kidney disease: Now, therefore, be
it
Resolved, That the House of Representatives--
(1) expresses support for the designation of ``National
Polycystic Kidney Disease Awareness Day'';
(2) supports the goals and ideals of National Polycystic
Kidney Disease Awareness Day to raise public awareness and
understanding of polycystic kidney disease;
(3) recognizes the need for additional research to find a
cure for polycystic kidney disease; and
(4) encourages all people in the United States and
interested groups to support National Polycystic Kidney
Awareness Day through appropriate ceremonies and activities to
promote public awareness of polycystic kidney disease and to
foster an understanding of the impact of the disease on
individuals and their families.
<all>
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
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