Stillbirth Health Improvement and Education for Autumn Act of 2021 or the SHINE for Autumn Act of 2021
This bill authorizes grants and establishes other programs to improve data collection on stillbirths.
Specifically, the Department of Health and Human Services (HHS) may award grants for surveillance and data collection on stillbirths, and HHS must issue guidelines for health departments and vital statistics units concerning the collection of stillbirth data. HHS must also develop educational awareness materials about stillbirths and make them publicly available.
Furthermore, HHS must implement a fellowship program to provide training in perinatal autopsy pathology and otherwise support research on stillbirths and fetal autopsies.
The bill also requires HHS to issue a report with educational guidelines on stillbirths and stillbirth risk factors.
[Congressional Bills 117th Congress]
[From the U.S. Government Publishing Office]
[H.R. 5487 Introduced in House (IH)]
<DOC>
117th CONGRESS
1st Session
H. R. 5487
To improve research and data collection on stillbirths, and for other
purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
October 5, 2021
Ms. Herrera Beutler (for herself, Ms. Roybal-Allard, Ms. Castor of
Florida, and Mr. Mullin) introduced the following bill; which was
referred to the Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To improve research and data collection on stillbirths, and for other
purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Stillbirth Health Improvement and
Education for Autumn Act of 2021'' or the ``SHINE for Autumn Act of
2021''.
SEC. 2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.
Title III of the Public Health Service Act is amended by inserting
after section 317L-1 of such Act (42 U.S.C. 247b-13a) the following:
``SEC. 317L-2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.
``(a) Stillbirth Surveillance and Risk Factor Studies.--
``(1) In general.--The Secretary may award grants to States
for purposes of--
``(A) conducting surveillance and collecting data
with respect to stillbirths; and
``(B) collecting and reporting data on stillbirth
risk factors, including any quantifiable outcomes with
respect to such risk factors.
``(2) Authorization of appropriations.--To carry out this
subsection, there is authorized to be appropriated $5,000,000
for each of fiscal years 2022 through 2026.
``(b) Guidelines and Educational Awareness Materials.--
``(1) In general.--The Secretary shall--
``(A) issue guidelines to State departments of
health and State and local vital statistics units on--
``(i) collecting data on stillbirth from
health care providers, and with the consent of
the family involved, including any such data
with respect to the clinical history,
postmortem examination, and placental
pathology; and
``(ii) sharing such data with Federal
agencies determined appropriate by the Director
of the Centers for Disease Control and
Prevention; and
``(B) develop, and make publicly available,
educational awareness materials on stillbirths.
``(2) Consultation.--In carrying out paragraph (1), the
Secretary shall consult with--
``(A) national health care professional
associations;
``(B) obstetricians and gynecologists;
``(C) pediatricians;
``(D) maternal-fetal medicine specialists;
``(E) midwives;
``(F) mental health professionals;
``(G) statisticians;
``(H) individuals who have experienced a
stillbirth; and
``(I) advocacy organizations representing such
individuals.
``(3) Authorization of appropriations.--To carry out this
subsection, there is authorized to be appropriated $1,000,000
for each of fiscal years 2022 through 2026.
``(c) Definitions.--In this section:
``(1) Stillbirth.--The term `stillbirth' means the death or
loss of a baby before or during delivery, occurring at or after
20 weeks of pregnancy.
``(2) Vital statistics unit.--The term `vital statistics
unit' means the entity that is responsible for maintaining
vital records for a State, or a political subdivision of such
State, including official records of live births, deaths, fetal
deaths, marriages, divorces, and annulments.''.
SEC. 3. PERINATAL PATHOLOGY FELLOWSHIPS.
The Public Health Service Act is amended by inserting after section
1122 of such Act (42 U.S.C. 300c-12) the following:
``SEC. 1123. IMPROVING PERINATAL PATHOLOGY.
``(a) In General.--The Secretary shall establish and implement a
Perinatal Pathology Fellowship Program to--
``(1) provide postgraduate training in perinatal autopsy
pathology;
``(2) conduct research on, and improve data collection with
respect to, fetal autopsies; and
``(3) address challenges in stillbirth education, research,
and data collection.
``(b) Authorization of Appropriations.--There are authorized to be
appropriated to carry out this section $3,000,000 for each of fiscal
years 2022 through 2026.''.
SEC. 4. REPORTS.
(a) Report by Surgeon General.--
(1) In general.--Not later than five years after the date
of enactment of this Act, the Surgeon General of the Public
Health Service shall publish on a public website of the
Department of Health and Human Services a report with
educational guidelines on stillbirth and stillbirth risk
factors.
(2) Contents.--Such report shall include, to the extent
practicable and appropriate, the guidelines issued and
educational awareness materials developed under section 317L-2
of the Public Health Service Act, as added by section 2 of this
Act.
(b) Report by Secretary of Health and Human Services.--Not later
than five years after the date of enactment of this Act, the Secretary
of Health and Human Services shall submit to the Congress a
comprehensive report on the progress and effectiveness of the Perinatal
Pathology Fellowship Program established under section 1123 of the
Public Health Service Act, as added by section 3 of this Act.
<all>
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
Referred to the Subcommittee on Health.
Subcommittee Consideration and Mark-up Session Held.
Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
Committee Consideration and Mark-up Session Held.
Ordered to be Reported (Amended) by Voice Vote.
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 117-210.
Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 117-210.
Placed on the Union Calendar, Calendar No. 151.
Mr. Pallone moved to suspend the rules and pass the bill, as amended.
Considered under suspension of the rules. (consideration: CR H7514-7515)
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DEBATE - The House proceeded with forty minutes of debate on H.R. 5487.
At the conclusion of debate, the Yeas and Nays were demanded and ordered. Pursuant to the provisions of clause 8, rule XX, the Chair announced that further proceedings on the motion would be postponed.
Considered as unfinished business. (consideration: CR H7536)
Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 408 - 18 (Roll no. 416).(text: CR H7514)
Roll Call #416 (House)On motion to suspend the rules and pass the bill, as amended Agreed to by the Yeas and Nays: (2/3 required): 408 - 18 (Roll no. 416). (text: CR H7514)
Roll Call #416 (House)Motion to reconsider laid on the table Agreed to without objection.
Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.