Down Syndrome Diagnosis Act

[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[H.R. 6412 Introduced in House (IH)]

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118th CONGRESS
  1st Session
                                H. R. 6412

   To amend title XXVII of the Public Health Service Act to provide 
       certain informational resources related to Down syndrome.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                           November 14, 2023

 Mr. Molinaro (for himself, Ms. Budzinski, and Mr. Lawler) introduced 
 the following bill; which was referred to the Committee on Energy and 
                                Commerce

_______________________________________________________________________

                                 A BILL


 
   To amend title XXVII of the Public Health Service Act to provide 
       certain informational resources related to Down syndrome.

    Be it enacted by the Senate and House of Representatives of the 
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

    This Act may be cited as the ``Down Syndrome Diagnosis Act''.

SEC. 2. PROVIDING INFORMATIONAL RESOURCES RELATED TO DOWN SYNDROME.

    (a) In General.--Subpart II of part A of title XXVII of the Public 
Health Service Act (42 U.S.C. 300gg-11 et seq.) is amended by adding at 
the end the following new section:

``SEC. 2730. INFORMATIONAL RESOURCES RELATED TO DOWN SYNDROME.

    ``(a) In General.--In the case of an individual enrolled under a 
group health plan or group or individual health insurance coverage who 
is diagnosed with Down syndrome while so enrolled (or who is pregnant 
and is given a diagnosis of Down syndrome with respect to the fetus 
while so enrolled), not later than 60 days after such plan or coverage 
is made aware (through claims data or otherwise) of the relevant 
diagnosis, such plan or coverage shall provide the informational 
resources described in subsection (b) to--
            ``(1) the individual; or
            ``(2) if the individual is under the age of 18, a parent or 
        legal guardian of the individual.
    ``(b) Informational Resources Described.--For purposes of 
subsection (a), the informational resources described in this 
subsection are the following:
            ``(1) Written information about Down syndrome, including 
        information on the range of physical, developmental, 
        educational, and psychosocial outcomes for individuals living 
        with Down syndrome, that--
                    ``(A) is up-to-date, evidence-based, and culturally 
                and linguistically appropriate for the individual; and
                    ``(B) was developed by--
                            ``(i) medical experts or representatives of 
                        national medical or genetics organizations; and
                            ``(ii) disability experts or 
                        representatives of patient advocacy groups.
            ``(2) Contact information for 1 or more organizations that 
        specialize in Down syndrome support, such as the National Down 
        Syndrome Congress, the National Down Syndrome Society, or the 
        Global Down Syndrome Foundation.''.
    (b) Effective Date.--The amendment made by subsection (a) shall 
apply with respect to plan years beginning on or after January 1, 2024.
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