Expressing the need for enhanced public awareness of Huntington's Disease and support for the designation of a "National Huntington's Disease Awareness Month".

[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[H. Res. 1257 Introduced in House (IH)]

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118th CONGRESS
  2d Session
H. RES. 1257

   Expressing the need for enhanced public awareness of Huntington's 
 Disease and support for the designation of a ``National Huntington's 
                       Disease Awareness Month''.


_______________________________________________________________________


                    IN THE HOUSE OF REPRESENTATIVES

                              May 23, 2024

 Mr. Pascrell (for himself and Mr. Smith of New Jersey) submitted the 
following resolution; which was referred to the Committee on Energy and 
                                Commerce

_______________________________________________________________________

                               RESOLUTION


 
   Expressing the need for enhanced public awareness of Huntington's 
 Disease and support for the designation of a ``National Huntington's 
                       Disease Awareness Month''.

Whereas Huntington's Disease is a fatal genetic disorder that causes the 
        progressive breakdown of nerve cells in the brain;
Whereas Huntington's Disease deteriorates a person's physical and mental 
        abilities usually during their prime working years and has no cure;
Whereas Huntington's Disease is a brain disease that is passed down in families 
        from generation to generation;
Whereas every child of a parent with Huntington's Disease has a 50/50 chance of 
        inheriting the faulty gene that causes the disease;
Whereas there are approximately 41,000 symptomatic Americans and more than 
        200,000 at risk of inheriting the disease;
Whereas Huntington's Disease is characterized by a triad of symptoms, including 
        progressive motor dysfunction, behavioral disturbance, and cognitive 
        decline;
Whereas Huntington's Disease causes deterioration in a person's physical, 
        mental, and emotional abilities, usually during their prime working 
        years;
Whereas most people start developing symptoms during adulthood, between the ages 
        of 30 to 50, but Huntington's Disease can also occur in children and 
        young adults (known as juvenile Huntington's Disease);
Whereas the lack of public awareness is so vast that understanding the awareness 
        level of Huntington's Disease is crucial to provide more suggestions for 
        public health campaigns; and
Whereas the Huntington's Disease Society of America has designated May as 
        ``National Huntington's Disease Awareness Month'': Now, therefore, be it
    Resolved, That the House of Representatives--
            (1) recognizes the life-altering impact Huntington's 
        Disease may have both on Americans living with the resultant 
        disabilities and on their families;
            (2) recognizes the need for enhanced public awareness of 
        Huntington's Disease;
            (3) supports the designation of a ``National Huntington's 
        Disease Awareness Month''; and
            (4) encourages the President to issue a proclamation 
        designating such a month.
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