No official summary available for this bill.
[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[H.R. 5469 Introduced in House (IH)]
<DOC>
119th CONGRESS
1st Session
H. R. 5469
To improve research and data collection on stillbirths, and for other
purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
September 18, 2025
Mrs. Kim (for herself, Ms. Castor of Florida, Ms. Kelly of Illinois,
Mr. Joyce of Ohio, Mr. Valadao, Mr. Nunn of Iowa, Mr. Carey, Mr.
Kennedy of New York, Mr. Tonko, Ms. Sherrill, Mrs. Hinson, Mrs. Watson
Coleman, Ms. Balint, Ms. Scholten, Ms. Morrison, Ms. Meng, Ms. Perez,
Mr. Panetta, Mr. Mann, Mr. Bacon, Mr. Veasey, Ms. Clarke of New York,
Ms. Budzinski, Ms. Adams, Ms. Van Duyne, Ms. DelBene, Mr. Fitzpatrick,
Ms. Craig, Mr. Moolenaar, Mr. Carter of Georgia, Mrs. Cammack, Mr.
Bilirakis, Mrs. Dingell, and Mr. Riley of New York) introduced the
following bill; which was referred to the Committee on Energy and
Commerce
_______________________________________________________________________
A BILL
To improve research and data collection on stillbirths, and for other
purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Stillbirth Health Improvement and
Education for Autumn Act of 2025'' or the ``SHINE for Autumn Act of
2025''.
SEC. 2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.
Title III of the Public Health Service Act is amended by inserting
after section 317L-1 of such Act (42 U.S.C. 247b-13a) the following:
``SEC. 317L-2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.
``(a) Stillbirth Surveillance and Risk Factor Studies.--
``(1) In general.--The Secretary may award grants to States
for purposes of--
``(A) conducting surveillance and collecting data,
including from existing datasets like State or sub-
State Fetal and Infant Mortality Review data, with
respect to stillbirths for public health and research
purposes;
``(B) building State and local public health
capacity to assess stillbirth data; and
``(C) collecting and reporting data on stillbirth
risk factors, including any quantifiable outcomes with
respect to such risk factors.
``(2) Condition.--As a condition of receipt of funds under
this section, all data collected shall be in a manner that
ensures that such data is deidentified, and at a minimum, that
there is no disclosure of any individually identifying
information regarding a patient or a patient's health care
provider, and otherwise in a manner that is consistent with
applicable Federal and State privacy law.
``(3) Authorization of appropriations.--To carry out this
subsection, there is authorized to be appropriated $5,000,000
for each of fiscal years 2026 through 2030.
``(b) Guidelines and Educational Awareness Materials.--
``(1) In general.--The Secretary shall--
``(A) issue guidelines to State departments of
health and State and local vital statistics units on--
``(i) collecting data on stillbirth from
health care providers, and with the consent of
the woman who experienced the stillbirth,
including any such data with respect to the
clinical history, postmortem examination, and
placental pathology; and
``(ii) improving processes and training
related to stillbirth data collection and
reporting to ensure standardization and
completeness of data; and
``(B) develop, and make publicly available,
educational awareness materials on stillbirths.
``(2) Consultation.--In carrying out paragraph (1), the
Secretary may consult with--
``(A) national health care professional
associations;
``(B) national associations representing State and
local public health officials;
``(C) organizations that assist families with
burial support and bereavement services;
``(D) nurses and nurse practitioners;
``(E) obstetricians and gynecologists;
``(F) pediatricians;
``(G) maternal-fetal medicine specialists;
``(H) nurse midwives and midwives;
``(I) mental health professionals;
``(J) statisticians;
``(K) individuals who have experienced a
stillbirth; and
``(L) advocacy organizations representing such
individuals.
``(3) Authorization of appropriations.--To carry out this
subsection, there is authorized to be appropriated $1,000,000
for each of fiscal years 2026 through 2030.
``(c) Vital Statistics Unit Defined.--In this section, the term
`vital statistics unit' means the entity that is responsible for
maintaining vital records for a State, or a political subdivision of
such State, including official records of live births, deaths, fetal
deaths, marriages, divorces, and annulments.''.
SEC. 3. EDUCATIONAL GUIDELINES REPORT.
(a) In General.--Not later than five years after the date of
enactment of this Act, the Secretary of Health and Human Services shall
publish on a public website of the Department of Health and Human
Services a report with educational guidelines on stillbirth and
stillbirth risk factors.
(b) Contents.--Such report shall include, to the extent practicable
and appropriate, the guidelines issued and educational awareness
materials developed under section 317L-2 of the Public Health Service
Act, as added by section 2 of this Act.
<all>
Introduced in House
Introduced in House
Referred to the House Committee on Energy and Commerce.
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