Advancing FASD Research, Services and Prevention Act or the FASD Respect Act
This bill reauthorizes and modifies programs that are administered by the Department of Health and Human Services (HHS) to address fetal alcohol spectrum disorders (FASD), including educational and research programs.
The bill also establishes FASD Centers for Excellence to support FASD prevention, such as through screenings, public awareness campaigns, and trainings, particularly at the state and local levels.
[Congressional Bills 119th Congress]
[From the U.S. Government Publishing Office]
[S. 139 Introduced in Senate (IS)]
<DOC>
119th CONGRESS
1st Session
S. 139
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Spectrum Disorders Prevention and Services program, and
for other purposes.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
January 16, 2025
Ms. Murkowski (for herself, Ms. Klobuchar, Mr. King, Ms. Hirono, Mr.
Moran, Ms. Baldwin, Ms. Cantwell, and Mr. Cramer) introduced the
following bill; which was read twice and referred to the Committee on
Health, Education, Labor, and Pensions
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Spectrum Disorders Prevention and Services program, and
for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Advancing FASD Research, Services
and Prevention Act'' or the ``FASD Respect Act''.
SEC. 2. SUPPORT FOR INDIVIDUALS AND FAMILIES IMPACTED BY FETAL ALCOHOL
SPECTRUM DISORDER.
(a) In General.--Part O of title III of the Public Health Service
Act (42 U.S.C. 280f et seq.) is amended--
(1) by amending the part heading to read as follows:
``fetal alcohol spectrum disorders prevention and services
program'';
(2) in section 399H (42 U.S.C. 280f)--
(A) in the section heading, by striking
``establishment of fetal alcohol syndrome prevention''
and inserting ``fetal alcohol spectrum disorders
prevention, intervention,'';
(B) by striking ``Fetal Alcohol Syndrome and Fetal
Alcohol Effect'' each place it appears and inserting
``FASD'';
(C) in subsection (a)--
(i) by amending the heading to read as
follows: ``In General'';
(ii) in the matter preceding paragraph
(1)--
(I) by inserting ``or continue
activities to support'' after ``shall
establish'';
(II) by striking ``FASD'' (as
amended by subparagraph (B)) and
inserting ``fetal alcohol spectrum
disorders (referred to in this section
as `FASD')'';
(III) by striking ``prevention,
intervention'' and inserting
``awareness, prevention,
identification, intervention,''; and
(IV) by striking ``that shall'' and
inserting ``, which may'';
(iii) in paragraph (1)--
(I) in subparagraph (A)--
(aa) by striking ``medical
schools'' and inserting
``health professions schools'';
and
(bb) by inserting
``infants,'' after ``provision
of services for''; and
(II) in subparagraph (D), by
striking ``medical and mental'' and
inserting ``agencies providing'';
(iv) in paragraph (2)--
(I) in the matter preceding
subparagraph (A), by striking ``a
prevention and diagnosis program to
support clinical studies,
demonstrations and other research as
appropriate'' and inserting
``supporting and conducting research on
FASD, as appropriate, including'';
(II) in subparagraph (B)--
(aa) by striking
``prevention services and
interventions for pregnant,
alcohol-dependent women'' and
inserting ``culturally and
linguistically appropriate
evidence-based or evidence-
informed interventions and
appropriate societal supports
for preventing prenatal alcohol
exposure, which may co-occur
with exposure to other
substances''; and
(bb) by striking ``; and''
and inserting a semicolon;
(v) by striking paragraph (3) and inserting
the following:
``(3) integrating into surveillance a case definition for
FASD and, in collaboration with other Federal and outside
partners, supporting organizations of appropriate medical and
mental health professionals in their development and refinement
of evidence-based clinical diagnostic guidelines and criteria
for all FASD; and
``(4) building State and Tribal capacity for the
identification, treatment, and support of individuals with FASD
and their families, which may include--
``(A) utilizing and adapting existing Federal,
State, or Tribal programs to include FASD
identification and FASD-informed support;
``(B) developing and expanding screening and
diagnostic capacity for FASD;
``(C) developing, implementing, and evaluating
targeted FASD-informed intervention programs for FASD;
``(D) increasing awareness of FASD;
``(E) providing training with respect to FASD for
professionals across relevant sectors; and
``(F) disseminating information about FASD and
support services to affected individuals and their
families.'';
(D) in subsection (b)--
(i) by striking ``described in section
399I'';
(ii) by striking ``The Secretary'' and
inserting the following:
``(1) In general.--The Secretary''; and
(iii) by adding at the end the following:
``(2) Eligible entities.--To be eligible to receive a
grant, or enter into a cooperative agreement or contract, under
this section, an entity shall--
``(A) be a State, Indian Tribe or Tribal
organization, local government, scientific or academic
institution, or nonprofit organization; and
``(B) prepare and submit to the Secretary an
application at such time, in such manner, and
containing such information as the Secretary may
require, including a description of the activities that
the entity intends to carry out using amounts received
under this section.
``(3) Additional application contents.--The Secretary may
require that an eligible entity include in the application
submitted under paragraph (2)(B)--
``(A) a designation of an individual to serve as a
FASD State or Tribal coordinator of activities such
eligible entity proposes to carry out through a grant,
cooperative agreement, or contract under this section;
and
``(B) a description of an advisory committee the
entity will establish to provide guidance for the
entity on developing and implementing a statewide or
Tribal strategic plan to prevent FASD and provide for
the identification, treatment, and support of
individuals with FASD and their families.''; and
(E) by striking subsections (c) and (d); and
(F) by adding at the end the following:
``(c) Definition of FASD-Informed.--For purposes of this section,
the term `FASD-informed', with respect to support or an intervention
program, means that such support or intervention program uses
culturally and linguistically informed evidence-based or practice-based
interventions and appropriate societal supports to support an improved
quality of life for an individual with FASD and the family of such
individual.''; and
(3) by striking sections 399I, 399J, and 399K (42 U.S.C.
280f-1, 280f-2, 280f-3) and inserting the following:
``SEC. 399I. FETAL ALCOHOL SPECTRUM DISORDERS CENTERS FOR EXCELLENCE.
``(a) In General.--The Secretary shall, as appropriate, award
grants, cooperative agreements, or contracts to public or nonprofit
private entities with demonstrated expertise in the prevention of,
identification of, and intervention services with respect to, fetal
alcohol spectrum disorders (referred to in this section as `FASD') and
other related adverse conditions. Such awards shall be for the purposes
of establishing Fetal Alcohol Spectrum Disorders Centers for Excellence
to build local, Tribal, State, and nationwide capacities to prevent the
occurrence of FASD and other related adverse conditions, and to respond
to the needs of individuals with FASD and their families by carrying
out the programs described in subsection (b).
``(b) Programs.--An entity receiving an award under subsection (a)
may use such award for the following purposes:
``(1) Initiating or expanding diagnostic capacity for FASD
by increasing screening, assessment, identification, and
diagnosis.
``(2) Developing and supporting public awareness and
outreach activities, including the use of a range of media and
public outreach, to raise public awareness of the risks
associated with alcohol consumption during pregnancy, with the
goals of reducing the prevalence of FASD and improving the
developmental, health (including mental health), and
educational outcomes of individuals with FASD and supporting
families caring for individuals with FASD.
``(3) Acting as a clearinghouse for evidence-based
resources on FASD prevention, identification, and culturally
and linguistically appropriate best practices, including the
maintenance of a national data-based directory on FASD-specific
services in States, Indian Tribes, and local communities, and
disseminating ongoing research and developing resources on FASD
to help inform systems of care for individuals with FASD across
their lifespan.
``(4) Increasing awareness and understanding of
efficacious, evidence-based screening tools and culturally and
linguistically appropriate evidence-based intervention services
and best practices, which may include by conducting nationwide,
regional, State, Tribal, or peer cross-State webinars,
workshops, or conferences for training community leaders,
medical and mental health and substance use disorder
professionals, education and disability professionals,
families, law enforcement personnel, judges, individuals
working in financial assistance programs, social service
personnel, child welfare professionals, and other service
providers.
``(5) Improving capacity for State, Tribal, and local
affiliates dedicated to FASD awareness, prevention, and
identification and family and individual support programs and
services.
``(6) Providing technical assistance to recipients of
grants, cooperative agreements, or contracts under section
399H, as appropriate.
``(7) Carrying out other functions, as appropriate.
``(c) Application.--To be eligible for a grant, contract, or
cooperative agreement under this section, an entity shall submit to the
Secretary an application at such time, in such manner, and containing
such information as the Secretary may require.
``(d) Subcontracting.--A public or private nonprofit entity may
carry out the following activities required under this section through
contracts or cooperative agreements with other public and private
nonprofit entities with demonstrated expertise in FASD:
``(1) Prevention activities.
``(2) Screening and identification.
``(3) Resource development and dissemination, training and
technical assistance, administration, and support of FASD
partner networks.
``(4) Intervention and treatment services.
``SEC. 399J. AUTHORIZATION OF APPROPRIATIONS.
``There are authorized to be appropriated to carry out this part
such sums as may be necessary for each of fiscal years 2025 through
2029.''.
(b) Report.--Not later than 4 years after the date of enactment of
this Act, the Secretary of Health and Human Services shall submit to
the Committee on Health, Education, Labor, and Pensions of the Senate
and the Committee on Energy and Commerce of the House of
Representatives a report on the efforts of the Department of Health and
Human Services to advance public awareness of, and facilitate the
identification of best practices related to, fetal alcohol spectrum
disorders identification, prevention, treatment, and support.
(c) Technical Amendment.--Section 519D of the Public Health Service
Act (42 U.S.C. 290bb-25d) is repealed.
<all>
Introduced in Senate
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Llama 3.2 · runs locally in your browser
Ask anything about this bill. The AI reads the full text to answer.
Enter to send · Shift+Enter for new line